Worried about Lewy Body Dementia Genetics? Let’s Talk

Support Group Talk about Lewy Body Dementia Genetics

In a recent support group I’m in, a 38-year-old woman has a mother 62 years old with early onset Lewy Body Dementia. She has started to worry about Lewy Body Dementia genetics and that she will develop LBD too. Every little thing worries her that it is a symptom of LBD. If she has a little tremor, she immediately goes to it being LBD. If she forgets where she left her keys, she panics that it is LBD. Other members of the group gave her some amazing advice.

First, there is some research that shows that it is not very often, but there is a chance that LBD is genetically transmitted. The National Institutes of Health researchers have reported that LBD may be due in part to genetics.

What to do if you are worried about Lewy Body Dementia being Hereditary?

If you are a caregiver for a parent or family member with LBD, it has probably crossed your mind to wonder if it is genetic. Are you going to get LBD too? Here are some things to do and how to handle your worries.

20 Things to do if you are worried about Lewy Body Dementia Genetics (and are non-symptomatic)

Credit to my wonderful support group for this list 🙂

1. If you have tremors or are forgetful it doesn’t mean you have LBD. It could come from stress or even medications. A real diagnosis comes from many other symptoms combined.
2. Talk to your doctor. Although there is no definitive way to diagnose LBD other than clinically, he might order a PETSCAN or DATSCAN.
3. Don’t go down the rabbit hole! Talk to a therapist about your concerns and how to deal with your worries.
4. Live for today, for the moment. Let tomorrow take care of itself.
5. Having an increased risk does not mean it is your fate.
6. Do things you CAN control.
7. Eat a healthy diet.
8. Get plenty of sleep.
9. Keep your brain active and engaged.
10. Stay social. See friends, talk on the phone, and go to events.
11. Take your medications as prescribed.
12. Take any supplements prescribed regularly.
13. Live your best and fullest life possible.
14. Avoid toxins.
15. Exercise. Exercise. Exercise.
16. For peace of mind, make a comprehensive, reputable long-term care plan.
17. Don’t think about the “what ifs”.
18. Take that trip you’ve always wanted to.
19. Push a little harder in your next workout.
20. Eat healthily but don’t worry about some occasional splurges.

If you are worried about having Lewy Body Dementia, it’s important to speak with your doctor. It’s important to seek medical attention if you are experiencing any symptoms associated with LBD. These include memory loss, sleep disruptions, difficulty concentrating or making decisions, changes in behavior and mobility problems. Your doctor will be able to perform tests such as a physical exam and imaging scans to rule out other medical conditions that may cause similar symptoms before making a diagnosis.

In conclusion, anyone who is concerned about having Lewy Body Dementia should first seek the advice of their primary care physician. If symptoms persist, a referral to a neurologist or specialist in dementia should be sought. Careful tracking of symptoms and regular medical check-ups are important in order to maintain overall health and well-being. Additionally, support systems such as online communities, support groups, and counseling can provide valuable support for those with Lewy Body Dementia.

If you or a loved one has been diagnosed with Lewy Body Dementia (LBD) and are concerned about the hereditary nature of this condition, you are not alone. This article aims to provide an overview of Lewy Body Dementia, its symptoms and hereditary factors, as well as potential support and treatment options. We’ll look at some real life examples and help from support groups.

Support Group Talk about Genetics and LBD

In a recent support group I’m in, a 38-year-old woman has a mother 62 years old with early onset Lewy Body Dementia. She has started to worry that she will develop LBD too. Every little thing worries her that it is a symptom of LBD. If she has a little tremor, she immediately goes to it being LBD. If she forgets where she left her keys, she panics that it is LBD. Other members of the group gave her some amazing advice.

First, there is some research that shows that it is not very often, but there is a chance that LBD is genetically transmitted. The National Institutes of Health researchers have reported that LBD may be due in part to genetics.

What to do if you are worried about Lewy Body Dementia being Hereditary?

If you are a caregiver for a parent with LBD, it has probably crossed your mind to wonder if it is genetic. Are you going to get LBD too? Here are some things to do and how to handle your worries.

20 Things to do to Help Deal (and are non-symptomatic)

Credit to my wonderful support group for this list 🙂

1. If you have tremors or are forgetful it doesn’t mean you have LBD. It could come from stress or even medications. A real diagnosis comes from many other symptoms combined.
2. Talk to your doctor. Although there is no definitive way to diagnose LBD other than clinically, he might order a PETSCAN or DATSCAN.
3. Don’t go down the rabbit hole! Talk to a therapist about your concerns and how to deal with your worries.
4. Live for today, for the moment. Let tomorrow take care of itself.
5. Having an increased risk does not mean it is your fate.
6. Do things you CAN control.
7. Eat a healthy diet.
8. Get plenty of sleep.
9. Keep your brain active and engaged.
10. Stay social. See friends, talk on the phone, and go to events.
11. Take your medications as prescribed.
12. Take any supplements prescribed regularly.
13. Live your best and fullest life possible.
14. Avoid toxins.
15. Exercise. Exercise. Exercise.
16. For peace of mind, make a comprehensive, reputable long-term care plan.
17. Don’t think about the “what ifs”.
18. Take that trip you’ve always wanted to.
19. Push a little harder in your next workout.
20. Eat healthily but don’t worry about some occasional splurges.

If you are worried about having Lewy Body Dementia, it’s important to speak with your doctor. It’s important to seek medical attention if you are experiencing any symptoms associated with LBD. These include memory loss, sleep disruptions, difficulty concentrating or making decisions, changes in behavior and mobility problems. Your doctor will be able to perform tests such as a physical exam and imaging scans to rule out other medical conditions that may cause similar symptoms before making a diagnosis.

In conclusion, anyone who is concerned about having Lewy Body Dementia should first seek the advice of their primary care physician. If symptoms persist, a referral to a neurologist or specialist in dementia should be sought. Careful tracking of symptoms and regular medical check-ups are important in order to maintain overall health and well-being. Additionally, support systems such as online communities, support groups, and counseling can provide valuable support for those with Lewy Body Dementia.